Weekend with SMA is the annual meeting of people and families who live with spinal muscular atrophy (SMA). It was first organised in 2013. Now, the Weekend is one of the largest meetings dedicated to SMA in the world.
Over several days, organised are meetings, lectures, workshops, debates and presentations dedicated to living with SMA. Families affected by the disease take this time to share knowledge and experience of their daily struggle with the disease. They can also receive up-to-date information about treating SMA from the invited speakers.
Children are able to participate in an enternainment programme and are unlikely to get bored.
The Saturday integration evening is unforgetable with all the music, dance, quizes and performances.
The Weekend is possible only thanks to sponsors’ generosity. Thank you!